Shedding Light on Rare Diseases with Briya’s Datasets
Advancing Rare Disease Research and Treatments with Dynamic
On-Demand Datasets
Briya’s dynamic datasets provide in-depth insights into rare diseases, such as Duchenne Muscular Dystrophy, Cystic Fibrosis, Lipodystrophy, and more. Carefully curated, our datasets are built to help researchers understand rare disease causation, progression, treatment efficacy, patient demographics, and more – advancing treatment and patient outcomes within an under-researched disease category.
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The Duchenne Muscular Dystrophy Dynamic Dataset
Wide coverage: 5 hospitals & HMOs
Total patient count > 110
The Cystic Fibrosis Dynamic Dataset
Coverage: 5 hospitals & HMOs
Patient count > 500
The Lipodystrophy Dynamic Dataset
Coverage: 5 hospitals & HMOs
Patient count > 50
Benefits of the Dynamic Dataset
Extensive
Data Coverage
Access a high number of cases, even for ultra-rare conditions, enabling more robust and reliable research outcomes.
Comprehensive
Patient Journey
Track detailed patient journeys from diagnosis to treatment outcomes, offering a holistic view of rare disease progression and management.
High-Quality,
De-identified Data
All data is de-identified and standardized, ensuring compliance with privacy regulations while retaining the richness of clinical details.
Seamless
Integration
Our datasets are ready for integration into your research or analytics platforms, making data access straightforward and efficient.
Overcoming Challenges Around Rare Diseases
Although each rare disease affects fewer than 1 in 2,000 individuals by definition, the sheer number of rare disease types means that millions of people worldwide are impacted. Due to the small patient populations and high variability, rare diseases are often under-researched, with a significant lack of available data.
Whether you are conducting clinical research, developing new treatments, or enhancing patient care, Briya’s Dynamic Rare Disease Datasets aim to change this status quo, shedding light on often-overlooked areas of medical research and clinical trials. Expertly curated datasets ready to be customized are now available.
Access the Dynamic Dataset to power rare disease research
